WER HILFT WEM – Sozialdatenbank
Behörden Verbände Organisationen
Beratung und Information rund um das CHARGE- Syndrom, jährliches Bundestreffen, mehrere Familienwochenenden im Jahr, 2x jährlich eine Vereinszeitschrift, Betreuung von betroffenen Familien, Vertretung des CHARGE Syndromes in der Öffentlichkeit
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